It is a variant of Alzheimer’s Disease (AD)
This website is specifically for Australians with Posterior Cortical Atrophy (PCA). Posterior cortical atrophy (PCA) is a degenerative condition in which damage is focused at the back (posterior) region of the brain. It is a variant of Alzheimer’s Disease (AD).
It is in no way unique to Australians. In fact there are some very informative sites elsewhere (particularly in the UK) to which links are provided. However, people with PCA in Australia have, up until now, not been supported specifically as a group.
Alzheimer’s Australia is a significant resource and support for all forms of dementia and should be the first point of reference for all those seeking help and advice including PCA. This site seeks to complement the very good work of Alzheimer’s Australia by acknowledging that they do not have the resources to support variant groups. PCA is a variant group but there are estimated to be up to 1500 Australians suffering from PCA. This number is expected to grow significantly as the Australian population ages.
We aim to provide information about PCA to Australians and to give those with a connection to PCA (sufferers and carers) a place to connect with others with PCA so that we can support each other and raise awareness of the condition in Australia.
Much of the information (on this website) is adapted with permission from information provided by the Dementia Research Centre, University College London, at http://www.ucl.ac.uk/drc/pcasupport/